rare diseases: 'it can take an average of five years for a diagnosis'
mps i is now on the newborn screening panel in ontario, thanks to advocates like kim angel, executive director of the canadian mps society.
machado: 'no one cared about us before the pandemic, and now it's worse'
while the worst the pandemic has inflicted on many of us is not seeing friends and endless zoom calls, for too many others, it has meant a much darker version of an already-difficult life.
how i care: 'caregiving is demanding, but it can also be rewarding, even while your heart is breaking'
lynn daigneault cared for her husband who lived with lung cancer until he chose medical assistance in dying. her advice to other caregivers? speak up, ask for help and be kind.