in 1995, barry stein, learned that his colon cancer had spread first to his liver and then to his lungs. at the time of diagnosis, at age 40, he had a young family, and was told that he had a 15 per cent chance of surviving the disease.
after gruelling treatments and multiple surgeries, stein underwent two life-saving liver operations at a new york city hospital, but quebec’s health insurance board declined to compensate him for the cost of treatments that were not available in his home province.
that decision was upheld by a provincial health tribunal, but in 1999, the superior court of quebec ruled in stein’s favour. his case set the precedent for other patients receiving life-saving treatment in the united states and elsewhere in the world.
“it’s hard to believe that in 1995, there was one drug for colorectal cancer that had been used for over 40 years without much efficacy,” says stein. “i was lucky enough to have the type of cancer that was chaseable – meaning, that it moved slowly enough from one organ to another that we were able to do something about it.”
stein, now president of colorectal cancer canada, wants patients who are diagnosed with colon cancer to get educated on their unique situation and the treatment options that are available. he is urging those newly diagnosed to be proactive, ask questions, and seek support from patient organizations. and those who are experiencing symptoms, should utilize screening programs to help catch the cancer early, when it’s at its most curable stage.