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diabetes to the max: nhl veteran domi continues to inspire next generation through action and perseverance

toronto maple leafs forward max domi wants kids faced with the diagnosis of type 1 diabetes to feel confident about going after their own dreams.

all the effort is worthwhile, max domi says, to inspire kids and do what he does best: “living my dream of being a nhl hockey player despite my type 1 diabetes. that's a highlight.” ap
all max domi ever wanted to do was play hockey. he grew up in the sport with the same feisty passion of his famous dad, tie domi, who played 16 seasons in the nhl including a decade in toronto. (he has the same stocky build and incredible power.) but no one saw the diagnosis of type 1 diabetes that would complicate the demands on his body in such an intense sport. domi was diagnosed at age 12 with the chronic autoimmune disease that destroys insulin-producing cells in the pancreas. this means your body can’t manage glucose, or sugar, in the blood which is the primary energy source. type 1 diabetes also requires life-long insulin therapy and lifestyle adjustments, like hyper-focused management of everything you eat and do to balance the amount of insulin you have in your body.
type 1 diabetes is more commonly diagnosed in kids and young teens, but it can happen at any age – and it’s tough news to hear. but for domi, now a formidable forward for the toronto maple leafs, once he knew he could still play hockey, he was more worried about his parents.
“i knew zero about diabetes,” he told healthing after a recent leafs practice in toronto. “so the first thing i said to the doctor, i asked him if i could still play hockey because that was my life. i grew up with a dad that played so all i wanted to do was play in the nhl. he looked at me and chuckled and said ‘of course you can.’”
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what followed was more than a few blood tests and a week at sickkids hospital in toronto for the immersive diabetes clinic to learn all about the disease and what comes next. “i did not like needles, i’d be the first to admit it, so that was something else i had to overcome pretty quick,” he said.
“i felt bad, because it’s not just me, the 12-year-old kid it’s tough on for sure, but my mom and my dad, it just puts them through the wringer,” domi continued. “they’ve got to learn all this stuff and it’s scary knowing their kid could go out the door and anything could happen.”
while symptoms can be lightheadedness, confusion or shaking from blood sugar swings, dangerously high or low blood sugars can lead to seizures and diabetic coma, a life-threatening situation that causes unconsciousness and needs immediate medical attention. type 1 diabetes is a lot to deal with.

chasing your dreams with diabetes

now 17 years later with a successful nhl career, he’s devoted to doing his best work on and off the ice. he wants kids faced with the diagnosis of type 1 diabetes to feel confident about going after their own dreams and not letting the complexities of the disease (or other life hurdles) hold them back. he knows exactly what people and their families have to understand and learn to cope with along the way. his book, no days off: my life with type 1 diabetes and journey to the nhl was released in 2019 with a portion of proceeds from the sale of the book donated to breakthrough t1d, formerly juvenile diabetes research foundation, the leading global organization funding type 1 diabetes research.

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domi said he found inspiration in another longtime nhler, bobby clarke. the philadelphia flyers legend was diagnosed with type 1 diabetes when he was 13 and played 15 seasons in the nhl, winning two stanley cups with the flyers in the 1970s.
“i always told myself, if ever make it to the nhl, because i was fortunate enough to have bobby clarke to look up to, i want to do whatever i can to do what he did for me, even the smallest fraction, i’ll do something good for the world,” he said.
at each level of his journey to the nhl, he’d make a point to meet with as many kids with diabetes as he could to share his story so that kids could see they can do whatever they want to do, no matter the challenges. “you’re going to have to make adjustments and do things differently than your friends and your peers, but you can still do it,” he says of the realities of the disease.
to further spread his message of support and inspire others, domi launched a podcast called in range, sharing lessons from life experiences with type 1 diabetes. the title “in range” is a reference to keeping blood sugar levels within a safe range each day to fuel your body, which is an essential target for people with type 1 diabetes.

‘my life is like one big calculation’

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domi also wants to demystify some of the disease complications and setbacks to create more awareness of what life is like with type 1 diabetes.
“there are variables of exercise, stress, travel to cope with,” he explained. “any type of stress, if you get yelled at by your coach, you’re travelling and there’s time zones, you’re dehydrated or if you haven’t eaten anything since noon, they’re all going to impact your blood sugar like no one else has to deal with – but i’ve become accustomed to it.”
like everyone else, he has his down days where he’s wondered “why me?” but he credits the evolving technology for making his health easier to keep on track. one of the bigger challenges is how intense exercise like hockey can increase insulin sensitivity so he’s more at risk of having a low blood sugar than someone sitting at a desk for a living. and he’s open about the fact that mistakes happen all the time with miscalculations on insulin needed after he’s eaten something or had a particularly grueling workout.
he’s diligent about making those calculations for his best performance, but there’s a lot going on in elite sport.
“on game day, there’s morning skate, so there’s a warmup for that and then treatment and then i go out on the ice for 15 minutes. that’s all going to impact blood sugar. then you get off the ice, have a pre-game meal, have a nap, wake up, have a warmup or workout after that, then you have a game and after that you have a workout – so there’s like five or six things that you have to be aware of and you’re always playing catchup,” he said. “it’s a lot of figuring it out, trial and error, becoming your own doctor in some ways and listening to your doctors, and taking a lot of data and notes.”
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as he sums it up, “my life is like one big calculation. every day is a new day and you could do the same thing and it could be a completely different outcome.”
all the effort is worthwhile, he says, to inspire kids and do what he does best: “living my dream of being a nhl hockey player despite my type 1 diabetes. that’s a highlight.”
karen hawthorne
karen hawthorne

karen hawthorne worked for six years as a digital editor for the national post, contributing articles on health, business, culture and travel for affiliated newspapers across canada. she now writes from her home office in toronto and takes breaks to bounce with her son on the backyard trampoline and walk bingo, her bull terrier.

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