on april 2nd our lives changed forever! our beautiful and amazing son michael was diagnosed with a devastating ultra-rare disease. over the last couple of months we have gone through some tough times. telling our friends and family about our sons disease and asking for your help is probably the hardest thing we have ever had to do.
we are asking for your support to
1. please watch the video
2. donate what you can
https://www.gofundme.com/curespg50
or
https://curespg50.org (canadian tax receipt)
3. share our story with anyone that will listenwe love our son more than life itself and will do whatever we can to change his fate. with your support we can cure michael and other children affected by this disease!
thank you from the bottom of our hearts!
terry, georgia, zoe, zach & michael
#curespg50, #curemichael #journeytocuremichaelposted by terry pirovolakis on friday, june 21, 2019
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terry also started a gofundme campaign for his child, which went viral, raising $695,032 since it was posted at the start of may.
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the struggle is real! but we will get there, one step at a time…
#curespg50 #journeytocuremichael #walking…posted by cure spg50 on wednesday, august 7, 2019
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