it was only because of catherine’s continued advocacy that he was diagnosed nine months after his first symptoms appeared. an emergency room visit for a suspected gallbladder attack ultimately led to his pancreatic cancer diagnosis in february 2019. the attending doctor gave him a life expectancy of only 18 months, yet catherine was determined to change her husband’s fate.
“when he was diagnosed, none of us really knew what pancreatic cancer was. right then alex trebek’s pancreatic cancer was in the news, and we thought he was doing well and at one point declared he was in remission,” said catherine. “if he can get the right treatments, why can’t we get it? this ultimately provided us with false hope.”
importance of patient empowerment
leslie’s diagnosis came with the unfortunate news of a small but inoperable tumour, given its placement on an artery. this only provided further motivation for catherine to search for second opinions. though her efforts were constantly dismissed, she would not be deterred.
“we were thrown a pamphlet in oncology, but it didn’t really do anything,” she explained. “i was used to networking to find answers. i had to go and find trials. i had a file folder of different trials all over the world, but my research was passed off.” even at the height of the covid-19 pandemic when canadian healthcare systems were struggling the most, catherine continued to advocate for her husband’s care and quality of life.