in 2020, olivier goy, an entrepreneur, activist and photography lover from france, was diagnosed with
amyotrophic lateral sclerosis (als),
a rare neurodegenerative disease that can have many different underlying causes, presentations, and prognoses. some patients may live with the disease for decades, while others decline rapidly.
as a father of two, goy confronted the diagnosis head-on and began publicly sharing his fight against als, which affects approximately 3,000 canadians. today, at age 50, goy is a knight in the national order of merit, a knight in the legion of honour and an ambassador for the paris brain institute.
“olivier and i first met at a photography workshop in venice. the moment i spotted him, i knew he was a person worth knowing, as the camera around his neck was the same as mine,” joked allan kliger. “over the next several days, we became fast friends, intuitively recognizing a special friendship in the making. when aviva met olivier, his amazing wife virginie, and their two fabulous boys, clement and luis, she was charmed in an instant. we both love them as our own.”
inspired by goy’s tenacity, they joined brain canada’s community of dedicated donors with a substantial gift to support the olivier goy rising star trainee award in als research, lovingly powered by allan kliger, aviva rajsky & family.