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diseases & conditions

rare disease day 2024: cord announces launch of canadian rare disease network
this network will bring together patient groups, healthcare professionals, and researchers with a goal to advance care and support for the one in 12 canadians and their families affected by rare disorders.
andrew robichaud
rare diseases
feb 29 2024
durhane wong-rieger is the president and ceo of the canadian organization for rare disorders.

infographic: women account for majority of adhd drug claims throughout covid-19 pandemic
the report from the reformulary group shows that not only are adhd medications on the rise in all age groups, but prescriptions in female claimants have seen a three-fold increase since the few years before the covid-19 pandemic.
angelica bottaro
adhd
feb 28 2024
when broken down into age groups, the data from reformulary shows that female adhd claimants between 25 and 44 rose by 205.2 per cent in 2023, compared to males in the same age group, which still saw a significant increase of 98.2 per cent.

rare disease associations yet to see impact of canada’s billion-dollar pledge
the canadian government committed $1.5 billion last year to rare disease strategy, but a lack of movement continues to affect small organizations dedicated to helping patients with rare diseases.
angelica bottaro
rare diseases
feb 28 2024
rare disease day on february 29, 2024 is meant to spotlight rare diseases in the hopes that more people can get involved in organizations geared toward making the lives of those suffering more bearable.

the cancer collaborative: we're going to have to work together for a better cancer system in canada
collaboration brings together diverse perspectives, expertise, and resources, allowing stakeholders to identify common goals, share best practices, and develop co-ordinated strategies to address shared challenges.
sabrina hanna, bsc.
cancer
feb 24 2024
working together leads to more effective advocacy efforts, promotes transparency, accountability, and trust within the healthcare community.

cml: 'this thing is not going to be the end of my life'
onward mudindo was just 34 years old when he was diagnosed with a rare blood cancer called cml. over the next five years, the disease — and the side effects from the drugs used to treat it — forced him to face an increasingly uncertain future.
dave yasvinski
leukemia
feb 21 2024
"we only get to see our doctors once in a while, so it’s important to use that time wisely and to speak with confidence," is onward mudindo's advice for having good relationship with your doctor.

congenital heart disease in canada: stats, resources and living with the condition
congenital heart disease (chd) is the most common congenital disability in the world. in canada, it affects roughly one in 100 children.
robin roberts
heart health
feb 16 2024
children with congenital heart disease require regular monitoring, depending on the severity, by a pediatric cardiologist.

hiv rates rising in canada: how canfar and partners aim to end epidemic by 2025
between 2021 and 2022, rates of new hiv diagnoses rose by 24.9 per cent, the highest rise of new cases in over a decade.
angelica bottaro
hiv/aids
feb 16 2024
"… testing is key in canada for us to try and get our hiv rates under epidemic levels," said alex filiatrault, ceo of canfar.

machado: empathy is good for us and for healthcare professionals. yet, here we are
healthcare that comes with empathy and compassion has felt like too tall an order for far too long.
lisa machado
opinion
feb 16 2024
a lack of empathy affects not only the relationship between a doctor and patient and patient satisfaction, but also the way things turn out.
powered by
canadian society for exercise physiology
powered by
the leukemia & lymphoma society of canada (llsc)
powered by
save your skin foundation

rare disease day 2024: cord announces launch of canadian rare disease network
this network will bring together patient groups, healthcare professionals, and researchers with a goal to advance care and support for the one in 12 canadians and their families affected by rare disorders.
andrew robichaud
rare diseases
feb 29 2024
durhane wong-rieger is the president and ceo of the canadian organization for rare disorders.

infographic: women account for majority of adhd drug claims throughout covid-19 pandemic
the report from the reformulary group shows that not only are adhd medications on the rise in all age groups, but prescriptions in female claimants have seen a three-fold increase since the few years before the covid-19 pandemic.
angelica bottaro
adhd
feb 28 2024
when broken down into age groups, the data from reformulary shows that female adhd claimants between 25 and 44 rose by 205.2 per cent in 2023, compared to males in the same age group, which still saw a significant increase of 98.2 per cent.

rare disease associations yet to see impact of canada’s billion-dollar pledge
the canadian government committed $1.5 billion last year to rare disease strategy, but a lack of movement continues to affect small organizations dedicated to helping patients with rare diseases.
angelica bottaro
rare diseases
feb 28 2024
rare disease day on february 29, 2024 is meant to spotlight rare diseases in the hopes that more people can get involved in organizations geared toward making the lives of those suffering more bearable.

the cancer collaborative: we're going to have to work together for a better cancer system in canada
collaboration brings together diverse perspectives, expertise, and resources, allowing stakeholders to identify common goals, share best practices, and develop co-ordinated strategies to address shared challenges.
sabrina hanna, bsc.
cancer
feb 24 2024
working together leads to more effective advocacy efforts, promotes transparency, accountability, and trust within the healthcare community.
powered by
canadian society for exercise physiology

cml: 'this thing is not going to be the end of my life'
onward mudindo was just 34 years old when he was diagnosed with a rare blood cancer called cml. over the next five years, the disease — and the side effects from the drugs used to treat it — forced him to face an increasingly uncertain future.
dave yasvinski
leukemia
feb 21 2024
"we only get to see our doctors once in a while, so it’s important to use that time wisely and to speak with confidence," is onward mudindo's advice for having good relationship with your doctor.

congenital heart disease in canada: stats, resources and living with the condition
congenital heart disease (chd) is the most common congenital disability in the world. in canada, it affects roughly one in 100 children.
robin roberts
heart health
feb 16 2024
children with congenital heart disease require regular monitoring, depending on the severity, by a pediatric cardiologist.

hiv rates rising in canada: how canfar and partners aim to end epidemic by 2025
between 2021 and 2022, rates of new hiv diagnoses rose by 24.9 per cent, the highest rise of new cases in over a decade.
angelica bottaro
hiv/aids
feb 16 2024
"… testing is key in canada for us to try and get our hiv rates under epidemic levels," said alex filiatrault, ceo of canfar.

machado: empathy is good for us and for healthcare professionals. yet, here we are
healthcare that comes with empathy and compassion has felt like too tall an order for far too long.
lisa machado
opinion
feb 16 2024
a lack of empathy affects not only the relationship between a doctor and patient and patient satisfaction, but also the way things turn out.
powered by
the leukemia & lymphoma society of canada (llsc)

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