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machado: stop inferring that financial support from pharma means that advocacy groups are ineffective, biased or puppets
it's time to recognize patient and caregiver advocacy organizations for the critical role they play in the healthcare system. without them, there would be no one to call when your kid is diagnosed with cancer and you need the healing network of people who share your experience and no one standing up to policymakers to make life better for the patients yet to come.
lisa machado
opinion
jan 6 2024
apparently who helps to keep an organization's lights on is a reflection of the quality of good that they do.

virtual reality transports seniors living with dementia to other worlds
virtual reality has been in commercial use for years, most notably for younger generations who use it to play video games.
robin roberts
dementia
jan 5 2024
caregivers can also go along for the virtual ride via a secondary device, such as a tablet that mirrors what the person wearing the headset is seeing.

what it feels like: learning how to be yourself with autism
for nico boffa, living with autism is a journey to understand how he can be himself and not worry about “conforming” to be more like his neurotypical peers.
karen hawthorne
autism
jan 3 2024
now in grade 11, nico boffa is learning about photography and filmmaking, has joined school clubs, loves science and physics, and excels at track and field, especially running.

how i care for autism: ‘my life became autism’
for natacha raphael, an international public affairs expert with a biotech company, her son’s autism diagnosis was a life-changer in ways she hadn’t expected.
karen hawthorne
autism
jan 3 2024
natacha raphael, centre, with her two sons andrew and adam, 10. andrew, left, was diagnosed with autism spectrum disorder when the boys were two years old.

'i am number 12' campaign reignites push to start building a rare disease strategy
it has been almost a year since the government announced an investment of $1.5 billion over three years to support a national strategy for drugs for rare diseases, with no sign of movement forward.
members of canada's rare disease community
rare diseases
jan 2 2024
canadians with rare diseases face delays in diagnosis, timely access to medication and care, stigma, isolation and even discrimination.

how i care for high blood pressure and stroke: 'i just wanted to fix it'
shawnee kish made a discovery sorting through things at her mom’s house while she was in the hospital: a blood pressure cuff machine and prescription medication for hypertension.
karen hawthorne
hypertension
dec 18 2023
shawnee kish, right, has been the primary caregiver of her mother lynne sherry, left, since lynne suffered a stroke in 2020.

diagnosed with high blood pressure (hypertension): managing support, resources and lifestyle
here’s how you can manage a diagnosis of high blood pressure (hypertension).
karen hawthorne
hypertension
dec 18 2023
lifestyle changes like an increase in regular exercise can have a big impact on managing high blood pressure.

what it feels like: high blood pressure, heart disease and the determination to survive
heather evans is on a mission to help people understand hypertension and why it’s so important to get off the couch.
karen hawthorne
hypertension
dec 18 2023
heather evans, left, began her battle with hypertension 20 years ago and continues to fight to live for her son skyler.
powered by
canadian centre for caregiving excellence
powered by
obesity canada
powered by
diabetes canada

machado: stop inferring that financial support from pharma means that advocacy groups are ineffective, biased or puppets
it's time to recognize patient and caregiver advocacy organizations for the critical role they play in the healthcare system. without them, there would be no one to call when your kid is diagnosed with cancer and you need the healing network of people who share your experience and no one standing up to policymakers to make life better for the patients yet to come.
lisa machado
opinion
jan 6 2024
apparently who helps to keep an organization's lights on is a reflection of the quality of good that they do.

virtual reality transports seniors living with dementia to other worlds
virtual reality has been in commercial use for years, most notably for younger generations who use it to play video games.
robin roberts
dementia
jan 5 2024
caregivers can also go along for the virtual ride via a secondary device, such as a tablet that mirrors what the person wearing the headset is seeing.

what it feels like: learning how to be yourself with autism
for nico boffa, living with autism is a journey to understand how he can be himself and not worry about “conforming” to be more like his neurotypical peers.
karen hawthorne
autism
jan 3 2024
now in grade 11, nico boffa is learning about photography and filmmaking, has joined school clubs, loves science and physics, and excels at track and field, especially running.

how i care for autism: ‘my life became autism’
for natacha raphael, an international public affairs expert with a biotech company, her son’s autism diagnosis was a life-changer in ways she hadn’t expected.
karen hawthorne
autism
jan 3 2024
natacha raphael, centre, with her two sons andrew and adam, 10. andrew, left, was diagnosed with autism spectrum disorder when the boys were two years old.
powered by
canadian centre for caregiving excellence

'i am number 12' campaign reignites push to start building a rare disease strategy
it has been almost a year since the government announced an investment of $1.5 billion over three years to support a national strategy for drugs for rare diseases, with no sign of movement forward.
members of canada's rare disease community
rare diseases
jan 2 2024
canadians with rare diseases face delays in diagnosis, timely access to medication and care, stigma, isolation and even discrimination.

how i care for high blood pressure and stroke: 'i just wanted to fix it'
shawnee kish made a discovery sorting through things at her mom’s house while she was in the hospital: a blood pressure cuff machine and prescription medication for hypertension.
karen hawthorne
hypertension
dec 18 2023
shawnee kish, right, has been the primary caregiver of her mother lynne sherry, left, since lynne suffered a stroke in 2020.

diagnosed with high blood pressure (hypertension): managing support, resources and lifestyle
here’s how you can manage a diagnosis of high blood pressure (hypertension).
karen hawthorne
hypertension
dec 18 2023
lifestyle changes like an increase in regular exercise can have a big impact on managing high blood pressure.

what it feels like: high blood pressure, heart disease and the determination to survive
heather evans is on a mission to help people understand hypertension and why it’s so important to get off the couch.
karen hawthorne
hypertension
dec 18 2023
heather evans, left, began her battle with hypertension 20 years ago and continues to fight to live for her son skyler.
powered by
obesity canada

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