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what it feels like

what it feels like: 'epilepsy has made me a more grounded person'
her experience as a patient has taught dr. sonika kainth "what it's like to be a human with a chronic condition."
as told to sadaf ahsan
epilepsy
may 16 2022
sonika kainth wants the world to know that there are many forms of epilepsy — and they don’t all look like they do on tv. getty

what it feels like: epilepsy hasn't stopped me from enjoying life
when cameron reid was diagnosed with epilepsy, it took a patient group and a dedicated doctor to help him move through a deep depression and now he is "thriving."
as told to sadaf ahsan
epilepsy
may 12 2022
despite the challenges of living with epilepsy, cameron reid prioritizes being an advocate for the epilepsy community. getty

my son has hurler syndrome
hurler syndrome is a rare, progressive disorder diagnosed in children as young as a year old.
emma jones
what it feels like
may 9 2022
alex oliver, before his hurler syndrome diagnosis, with his father and mother, caroline marie fidalgo. supplied

als: what it feels like
adam welburn-ross was just 43 when he received a devastating diagnosis: he had als.
emma jones
what it feels like
may 6 2022
"the problem with that is that when you're classified as a rare disease you don't get the funding that cancer gets, you don't get funding that a lot of other neurological diseases get," says adam welburn-ross. supplied

what it feels like: diagnosis of ocd and anxiety while pregnant 'clarified my whole life'
"women should not feel like they are alone. there is help out there," dagny said, reflecting on her journey with ocd and anxiety. "i had the help i needed immediately, and i know that if i'm in crisis again, it's there for me."
emma jones
what it feels like
apr 25 2022
according to the international ocd foundation, pregnancy and the 12 months after birth is a particularly vulnerable time for symptoms of ocd and anxiety to occur. getty

living with dementia: what it feels like
refusing to let a devastating diagnosis hold him back, bob murray volunteers on patient advisory committees, does radio interviews and writes a blog.
emma jones
dementia
apr 19 2022
in canada, just over seven per cent of the population 65 and older is living with dementia. getty

treatment-resistant depression: what it feels like
"when you have depression you feel like you're the only person out there," says bruce ross, who lives with depression that hasn't responded to medication or therapies.
emma jones
what it feels like
mar 31 2022
through bruce ross' 45-year journey with depression, he says he never lost hope. supplied

what it feels like: 'i can conquer anything' living with epilepsy
although epilepsy is highly treatable with medication, 30 per cent of people with the disease, like 37-year-old erin mcdonald, rely on brain surgery to keep it in check.
karen hawthorne
epilepsy
mar 25 2022
for erin mcdonald, coping with epilepsy is about speaking up for herself, even though she knows she’ll never be seizure-free — or independent. getty
powered by
movember canada
powered by
canadian centre for caregiving excellence
powered by
canadian society for exercise physiology

what it feels like: 'epilepsy has made me a more grounded person'
her experience as a patient has taught dr. sonika kainth "what it's like to be a human with a chronic condition."
as told to sadaf ahsan
epilepsy
may 16 2022
sonika kainth wants the world to know that there are many forms of epilepsy — and they don’t all look like they do on tv. getty

what it feels like: epilepsy hasn't stopped me from enjoying life
when cameron reid was diagnosed with epilepsy, it took a patient group and a dedicated doctor to help him move through a deep depression and now he is "thriving."
as told to sadaf ahsan
epilepsy
may 12 2022
despite the challenges of living with epilepsy, cameron reid prioritizes being an advocate for the epilepsy community. getty

my son has hurler syndrome
hurler syndrome is a rare, progressive disorder diagnosed in children as young as a year old.
emma jones
what it feels like
may 9 2022
alex oliver, before his hurler syndrome diagnosis, with his father and mother, caroline marie fidalgo. supplied

als: what it feels like
adam welburn-ross was just 43 when he received a devastating diagnosis: he had als.
emma jones
what it feels like
may 6 2022
"the problem with that is that when you're classified as a rare disease you don't get the funding that cancer gets, you don't get funding that a lot of other neurological diseases get," says adam welburn-ross. supplied
powered by
movember canada

what it feels like: diagnosis of ocd and anxiety while pregnant 'clarified my whole life'
"women should not feel like they are alone. there is help out there," dagny said, reflecting on her journey with ocd and anxiety. "i had the help i needed immediately, and i know that if i'm in crisis again, it's there for me."
emma jones
what it feels like
apr 25 2022
according to the international ocd foundation, pregnancy and the 12 months after birth is a particularly vulnerable time for symptoms of ocd and anxiety to occur. getty

living with dementia: what it feels like
refusing to let a devastating diagnosis hold him back, bob murray volunteers on patient advisory committees, does radio interviews and writes a blog.
emma jones
dementia
apr 19 2022
in canada, just over seven per cent of the population 65 and older is living with dementia. getty

treatment-resistant depression: what it feels like
"when you have depression you feel like you're the only person out there," says bruce ross, who lives with depression that hasn't responded to medication or therapies.
emma jones
what it feels like
mar 31 2022
through bruce ross' 45-year journey with depression, he says he never lost hope. supplied

what it feels like: 'i can conquer anything' living with epilepsy
although epilepsy is highly treatable with medication, 30 per cent of people with the disease, like 37-year-old erin mcdonald, rely on brain surgery to keep it in check.
karen hawthorne
epilepsy
mar 25 2022
for erin mcdonald, coping with epilepsy is about speaking up for herself, even though she knows she’ll never be seizure-free — or independent. getty
powered by
canadian centre for caregiving excellence

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